Nica is continuing to do well. She got a bed side bath today and her hair washed. Both of which weer desperately needed. Today was also the day Anne gave Nica a get well gift. She picked out an animated flying duck. The propeller has LEDs in it and spells out get well soon and plays “You are my Sunshine” It’s really cute. We also got a our first good look at her incision. It’s bigger than we had originally expected but the scar should be fairly subdued. By the time she grows up I reckon it she be barely noticeable. I told Tammy she needs a tattoo of a zipper fob at one end of it.
For any one who has changed Nica’s diaper, put on her pants, or worked with her for PT I imagine one picture will come as a surprise. Her scissoring was getting so bad that her legs were difficult to spread and had in fact begun to chafe against her diaper elastic. Now, she can really relax without even trying. It’s helping her bottom to heal and cleaning her for a diaper change is hurting her less and less. Her legs are so loose it’s amazing. Her hands too are showing increased functionality. Miss Heather, her OT, was right sooner than she expected. She’s not going to need her supinator strap any more. That’s especially true when you stop and realize that they put her IV and it’s support on her “good” hand. So everything she does is OT. She’s crossing mid-line more easily and readily even with the awkwardness of the IV.
We never made into the wheelchair today. She’s still been protective of her back and hesitant to move a lot and be held for long. As a result, Daddy is the only one who’s gotten to hold so far. We got to snuggle on the couch for about 45 min while we watched Rio. That was when I realized her diaper had twisted and she peed all down my front. Mind you I had just gotten out of the shower right before I picked her up. That was her first voiding following the catheter removal. At least we now that’s working OK. After cleaning both of us up we tried letting Mommy hold her but Nica asked if she could just lay instead. She’s been really sleepy most of the day and she’s managed a small nap in the early evening. I’m hoping she and I both have a more restful night.
We’re still waiting on the order to come through for the PT to come visit. They’re being cautious about too much stretching of the wound area. We can certainly appreciate that. We haven’t been told what to expect tomorrow from the doctors that are treating her so we’re just going to wing it. We do have some visitors coming tomorrow, Grandma Kathy and Grandpa Joe, Grandpa and Tutu, and Miss Megan are all planning to stop by throughout the day.
May you all have a good night and check back tomorrow. Various Bat times, same bat channel.
Ray
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- Ahh, finally I can relax.
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- A gift from Sissy
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- Can sombody zip me up?
1) Her incision looks really good! I can’t even imagine how uncomfortable it must be, I’ve only had 2 small ones, not even an inch each.
2) Good choice, Anne! SOOO cute! I know Sissy appreciates your thoughtful gift!
3) I am super excited to see her sitting with her legs spread like that, I know before she was stuck with them together!
4) I can’t wait to see you guys tomorrow! Now I gotta go to bed so I can leave at a reasonable time.
We’re looking forward to seeing all of you!
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