Wow, what a day. We finished up our morning sessions and took our lunch break. We played in the play room for a little bit where they had a nice full taco bar. Unfortunately, Nica was to tired to stay happy long enough for either of us to enjoy it. She insisted on fish for lunch. Upon finally finding and getting it for her she refused to eat it. A few minutes later she said she was tired and wanted to go to bed for a little break. As soon as she got settled there came a knock at the door for her afternoon PT. Following that we both went back to the room for naps. She succeeded were I failed. When she woke up our new room was ready and we moved and she had dinner. The new room is much better. It has a full bath where I can wash Nica by myself. They brought me a bath chair similar to the one we use at home and she got a shower. She laughed and giggled and yelled “Yay, a water bath!” over and over. Then she said “Grandma Kathy would be so proud of me.”
They originally tried for her PT at 8am today but came back at 10:30am instead. Tomorrow is looking a bit more reasonable for her at 9am. That gives her a chance to eat before work. So far the staff here has been really great. As usual Nica is winning them over with her zany antics and fun personality. On the flip side, they’ve all had a chance to hear how loud she came scream. We are both missing Mommy and Anne pretty bad. Anne got Nica a blanket after the surgery and I told Nica that Anne filled it up with hugs and kisses to be used later as needed. Nica then held that blanket for a good 10 min saying hugs and kisses sissy. she keeps going back to it every few minutes and she makes sure I get lots of turns to use the blanket, too. We cannot wait for this weekend we our family can be whole for couple of days. I really miss having all of my girls together with me. I didn’t think it would get this hard for me; especially not this early on. I guess we just need to find a routine and go through the motions in order to do what we came for. I know that in the end, it will be worth it, but that doesn’t make the now any easier. I’d better wrap it up. I seem to be keeping Nica awake. Goodnight.